Day 9 – A Little More Clarification
Things have been pretty good the last couple days. I would almost say that it felt like old times. Sean and I having breakfast, sharing laughs over a cup of coffee and then heading back to our office to do some work. These past days played out like a million days before. And, it was really nice.
The one thing about good times, they go by so fast. And unfortunately these past 2 days flew by faster than fast. It seemed that 4 days ago, time wouldn’t go fast enough and here I was wanting time to stop. I want to keep every hour I can with Sean. Every second. Even when Sean takes a shower, I feel like too much time has passed without him. Like I have mentioned before, time doesn’t feel the same anymore.
But time keeps marching on and today it was time to see the doctor again. There were only a few things I wanted today. I wanted to make sure Sean got more pain medication, I wanted to know the biopsy results and I needed to get all of Sean’s patient charts, x-rays, etc. to take to Mayo on Monday.
The doctor appointment went fine. Our doctor, Dr. Venar is really nice and he seems to actually care about Sean (that sounds weird right? Shouldn’t all doctors care about their patients? In our experience, most doctors don’t care) But not Dr. Venar. He has been really great. Sean did get more pain meds (enough to last until Mayo) and we got all the paperwork info we needed. We also got a final confirmation of Sean’s diagnosis – highly aggressive Stage 4 cancer.
It wasn’t a great day but it was a day with more clarification than we had yesterday. Every piece of information helps us figure out the treatment Sean will need to fight this. (boy wouldn’t it have been nice to walk in and hear him say, we made a huge mistake. This was all a misunderstanding.)
So it may not have been a great day, as far as the disease goes, but there were some amazing things that happened today:
1. We had friends from Nashville drive down, just for the afternoon, to hang out with Sean. This was so special. Seeing Sean joke and laugh was priceless. Thank you so much to the Great 8 for coming all the way to Orlando just to say hey. It was amazing to meet the new family and to let us be part of some joy for the day. You guys have no idea how much that meant to us.
2. A YouTube video was posted and was the sweetest and most heart warming thing we have ever been part of. Thank you to everyone that was part of the video. We are forever grateful for each and every one of you. We are honored to know you all! Your words inspire us and drive us to keep fighting.
I think this will most likely be the last post (maybe, who knows. I seem to say that a lot here lately and end up writing a huge novel, haha) until we head to Jacksonville on Sunday. Thanks to everyone for the messages and comments. I haven’t had time to respond but know that I have read them all. Thank you for all the tips, words of advice, love, compassion and kindness. ♥️🥰♥️
Next stop…Mayo Clinic ➡️