We arrived in Jacksonville, FL this evening and settled into our hotel. Sean and I had a good laugh because even though we are here in Jacksonville for a not so great reason, we still love exploring new places. And

Things have been pretty good the last couple days. I would almost say that it felt like old times. Sean and I having breakfast, sharing laughs over a cup of coffee and then heading back to our office to do

It's officially been one week since this whole journey began. One week that feels like a lifetime. The week has brought out so many emotions in us but I think the biggest has been fear. And honestly, it's not the

(I'm catching up on days because I just looked at a calendar and realized it has almost been a week now since this all began. All of my days have blurred and I wanted to try to get my posts

I think I have tried to write this post 7 times now but each time I have to stop because I can't see through the tears. No, not tears of sadness. These are tears of joy, hope and love. And

Today we woke up angry. Not at each other. Angry at this disease and angry that the medical world doesn't want to move as fast as us. WHY CAN'T WE JUST START NOW?!?!? Yesterday I wrote about time. Time just feels

I'm not gonna sugar coat it, yesterday sucked. It sucked so so bad. The feeling of absolute helplessness was something that Sean and I have never felt before. It was like being in a muddy pit with concrete being poured